Stikkord » M E ♥


This is a pretty difficult entry to write. Sorry if it becomes a little self absorbed (given the topic) and misses quite a lot of important big picture stuff. 403 more words




To see wether reducing activity, especially at the point at which activity would normally be increased, will have any effect on energy levels and aid recovery. 377 more words


Less Lumpy

For as long as I’ve been ill, I’ve had a lump on the side of my neck. It varies in size a lot, but it’s always been there. 356 more words



Torino, Italy, 23 and 24 May, 2015
Via Carlo Alberto



Random stuff

I know, it’s a rubbish title, but it’s late and I don’t have any brain cells left to think of a better one ;-)

I’ve not done a «weekly roundup» post for a couple of weeks because not much has been happening.  409 more words

Mast Cell Activation Disorder

A day of rest - good intentions and all that!

I only work part-time so I’m very lucky to have Fridays off. The plan was that Friday would be my day of rest, a chance to recover a bit from my week at work and hopefully regain some energy so that I could actually do things at the weekend. 635 more words

ME, Myself and I: 'How Well Are You?' Scales

Recently I had an appointment with a nurse for something unrelated to ME and one of the questions I had to fill in before I went was to rate myself ‘on a scale from 10 to 100 where 1 is the worst possible health you can imagine and 100 is the best possible health you can imagine’. 730 more words