I seem to have had lots of new followers in the past couple of weeks, so «hi» and *waves* to you all, though why any of you want to listen to me rabbiting on is anyone’s guess ;-) 652 ord igjen
Stikkord » M E ♥
Mag plucked reasons to be thankful from egregious days. I mean to follow suit, shall practise gratitude conscientiously. This morning’s list, to linger over (note to self!), details eased loose from concertina folds of anxious mind: hearing the voices of my family, over the telephone, means so much; writing when hope and mettle need retouching; ferocious skull-pain dulling; a meditation buddy; chums who keep in touch; Meryl, my sparkle-hearted carer, humming while she works; the taste of cauliflower, oven-baked, bedecked with turmeric; knowing Mag, for a little while; and, these last few weeks, scattered yet finely tuned exchanges with two #BedFest friends, one old, one new, who seem to see me from their bedsteads on another continent. 15 ord igjen
Do you wonder how best to interact with people who are sick? Or maybe more to the point what not to say and do? Clearly everyone is different so there are not hard and fast rules but here are a few of my thoughts after 3.5 years of Chronic Fatigue Syndrome an ‘invisible illness’ where most of the time I look healthy. 624 ord igjen
Warning: this post is about my gastroenterology problems and therefore contains TMI about my poop.
The specialist nurse called today. I was wanting to be taken off azathioprine because it doesn’t seem to be doing anything after 13 weeks at my current dose. 355 ord igjen