Stikkord » M E ♥

Pushing Through

A blogging friend over at The Walking Allergy  made some interesting observations about illness management on a recent blog post of mine, and it’s made me think about my own experience.  994 more words

Ehlers-Danlos Syndrome

This Friday is Red!

What could I say as Russian Canadian today. Here, in Canada, current PM likes Cuba and China. Now in USA, their current president likes Russia. And Russian President is OK with North Korea. 11 more words


Today is a sad day. No real reason. I’m not depressed though, just sad. It’s a build up of feeling physically rubbish for the last two weeks as this bathroom is being done. 456 more words


Don't judge a book by its cover 

Being able to do this may look freaky or cool but it definitely is not for me. For those people who have commented ‘you don’t look ill’ I would like to firmly remind you some illnesses are invisible. 246 more words


Trying Something New: the Low GL Diet

Sorry if this turned into a bit of a wall of text. I’m always a bit hesitant about posting the things I’ve tried for my M.E. 2 223 more words


I have no voice

As I’ve mentioned in recent posts, when I first contracted M.E. I was determined to raise the profile of my illness.  Back in the early 1990s nothing was known about the disease, it wasn’t in the public or the medical professional’s field of consciousness, and only a handful of people world-wide were fighting for M.E. 650 more words

Myalgic Encephalomyelitis

Weekly roundup

In order for me to get through everything I need to do with my very limited energy I have to have a schedule.  I break the week up into days and each day up into hours and each hour has an activity.  667 more words

Mast Cell Activation Disorder