Stikkord » M E ♥

Weekly roundup

This week was the first of my stay-cation but I’ve been so busy I think I’m going to need another holiday to get over my holiday ;-)  Back pain aside, however, it’s been a… 568 more words

Mast Cell Activation Disorder

A new shape to my ambition

I’m being paid to write ! How amazing is that ?

A few years ago, I did a little work for the Hundred House Hotel at Norton to help keep their blog up to date. 267 more words



Over the last week, I’ve had to make some decisions about what to study for my next module. The official choice is scriptwriting.I was so excited about this, my secret ambition has been to write a radio play; it’s a medium I love, and never fail to be amazed by the emotion and impact of a fifteen minute drama. 139 more words



Being chronically ill isn’t how it’s portrayed on the telly.  On the tv people get sick, lie on the couch looking fabulous (if a bit pale and wan) while their friends and family rally round bringing blankets and chicken soup, enabling them to make a complete recovery usually with the help of some miraculous new medical intervention.  589 more words

Mast Cell Activation Disorder

DWP benefit compliance interview day

Today had been a day I had dreaded ever since I got a letter in a little brown envelope telling me to go to a benefit compliance interview. 694 more words

Keep Asking Questions

This is probably another of those posts where I’ve already kind of posted about in the past as part of another topic but I feel like it deserves its own post and it’s something that’s kind of relevant in my life at the moment. 954 more words


Brain Fog

I find the problems I have with memory, thinking and cognition are the hardest to explain to healthy people.  ‘Brain fog’ is a common term used by M.E. 1 063 more words

Ehlers-Danlos Syndrome